Resources

Your best resource is our Wellness Ambassadors, some of whom are pictured above. You can schedule a Zoom video or phone call with one of our Ambassadors here.

COVID-19 Vaccination

End-stage renal disease (ESRD) patients are among the most vulnerable populations for poor outcomes of COVID-19. They have the highest rate of COVID-19 hospitalization among all Medicare beneficiaries - four times that of other seniors in the same age group, and 25 times more likely to die. For this reason, we recommend all dialysis patients speak to their primary provider and get vaccinated. Rogosin Chief Medical Officer, Jeffrey Silberzweig, MD, and other prominent nephrologists were recently interviewed by MedPage Today about vaccinating dialysis patients. You can read the article here.

Both the Pfizer and Moderna COVID-19 vaccines are mRNA vaccines. New York State released a video explaining how mRNA vaccines work to safely protect individuals from COVID-19. You can watch it here. The Johnson & Johnson COVID-19 vaccine is a recombinant viral vector vaccine. Learn more about the vaccines at the CDC website.

If you have already been vaccinated and you are on dialysis or are a transplant patient, you should talk to your nephrologist or transplant team about getting the latest booster shot. The CDC has a page dedicated to booster shots here.

To Find a COVID-19 test site near you, go to the NYSDOH COVID-19 Test Site Finder or call the NYSDOH COVID-19 Hotline at 1-888-364-3065.

Guidelines are constantly being updated so check back often.

The Rogosin Institute has a COVID-19 Resource page specifically for patients with kidney disease, dialysis and transplant patients.

What Every Kidney Patient Should Know

Every kidney patient should be aware of their rights and responsibilities. IPRO offers an excellent summary here.

Patients should understand who the members of their health care team are. The American Kidney Fund offers a detailed article describing each care team member's roles and responsibilities here.

Essential Resources

We consider these to be essential resources for every kidney patient!

The American Kidney Fund's Kidney Kitchen offers kidney friendly eating at every stage.

Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for those who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

Read ESRD NCC's Guide to a Healthier You.

Read ESRD NCC's Tips for Staying Healthy Outside of the Dialysis Clinic.

IPRO's offers tools and resources to develop a life plan.

My Life, My Dialysis Choice This online tool can help you chose the right treatment for you so you can feel your best and live the way you want to.

Nutrition is key to managing kidney disease and your overall health. Learn more about food and your kidneys at the National Kidney Foundation Nutrition site.

NIDDK provides guidance for a healthy diet that is designed to help protect you from heart and kidney disease. Keep your heart and kidneys healthy by eating plenty of the right foods.

Sodium Girl offers information on how to lower sodium intake without loosing flavor and the thrill of eating. You can find advice on food shopping, travel, dining out, snacking, and recipes for kidney patients.

The National Forum of End Stage Renal Disease Networks, Patient Toolkits include: Dialysis Patient Depression, Financial Help Resources, and Dialysis Patient Grievance Toolkits.

Education and Information

Listen to patient education, stories, outreach and more at Rogosin Apple Podcasts.

Learn more about your coverage, enrollment, participation and further information regarding the ESCO and CEC.

The Kidney Hub a secure, mobile-friendly web tool for patients designed to be viewed on a smart device, such as a smart phone or a tablet.

The Kidney Transplant Hub is an ESRD NCC extensive resources hub for kidney transplant.

Comprehensive information on home dialysis created by the non-profit Medical Education Institute, Inc.

The mission of Home Dialyzors United is “To inspire, inform, and advocate for an extraordinary quality of life for the home dialyzor community.”

Kidney School offers free online learning modules and audio books about everything a patient needs to know about living with kidney disease.

Transplant First Academy ensures no patient is denied the right to proactively explore preemptive kidney transplant opportunities.

MEI works to improve outcomes for people with chronic kidney disease through various programs.

The NKDEP provides educational resources for people with kidney disease.

Learn more about UNOS Kidney Paired Donation Pilot Program.

The USRDS is a national research data system that collects and distributes kidney disease and kidney care information.

Associations and Organizations

The American Association of Kidney Patients is dedicated to improving the quality of life for kidney patients through education, advocacy and the support of patient communities.

The American Kidney Fund works to ensure that every kidney patient has access to health care, and that every person at risk for kidney disease is empowered to prevent it.

Dialysis Patient Citizens is a non-profit organization in the United States that advocates for dialysis patients through public education and governmental lobbying.

The ESRD NCC provides extensive resources for both patients and professionals.

IPRO supports over 31,000 dialysis patients receiving treatment at 330 Medicare certified dialysis facilities including six Veterans Affairs hospitals, and 14 transplant centers in the Network service area.

LiveOnNY is a nonprofit, federally designated organ procurement organization (OPO) dedicated to the recovery of organs and tissue for transplant in the greater New York metropolitan area.

National Kidney Registry matches living donors with compatible recipients. Register to join a donor chain or to donate a kidney.

The National Kidney Foundation also offers educational resources for kidney care, prevention, and transplantation.

The National Forum of End Stage Renal Disease Networks advocates for the organizations that monitor the quality of chronic kidney disease, dialysis and kidney transplant care in the USA.

Renal Support Network is a nonprofit, patient-focused, patient-run organization that provides non-medical services to those affected by chronic kidney disease.